Salvesen Mindroom University of Edinburgh study looking at learning in ADHD

The Salvesen Mindroom Centre Research Centre team at the University of Edinburgh would like to say thank you to everyone from the Glasgow ADHD groups that volunteered to help us pilot our new study looking at learning in children with ADHD. Now this pilot study has been completed we are starting the official recruitment stage of the project.

This study is looking at the relationship between how children with ADHD remember things and pay attention and how they do in maths and literacy including reading, spelling and writing. There is a suggestion in research that memory and attention may be linked to how children with ADHD learn these subjects. We are looking to improve our understanding of this and to tackle the difficulties many of these children face in their learning.

In this next phase of the project we are looking to recruit around 120 children aged 6-12 years referred to Child and Adolescent Mental Health Services (CAMHS), focusing on the North CAMHS team in Edinburgh. We also hope to extend this study to other CAMHS teams in the very near future.

Image result for salvesen mindroom research centre

 

New ADHD Parent Support Group for Dumfries and Galloway

We had an exciting day today at Castle Douglas Town Hall, hosted by the Dumfries and Galloway Parents Inclusion Network, meeting up with parents of children with ADHD and staff from Dumfries and Galloway CAMHS – to talk about creating a new support group for families affected by ADHD in Dumfries and Galloway. A closed Facebook group has been created for parents in the area who would like to get involved in the new group, and you can join it at https://www.facebook.com/groups/440657899692661

The Coalition will continue to support the new group as they get going with workshop resources and other information about ADHD.

For more information you can contact Shirley Duggan at Parents Inclusion Network.

 

 

MSPs debate the portrayal of ADHD in the media

Today’s debate in the Scottish parliament was opened by Daniel Johnson MSP with an inspiring speech describing the strengths which having ADHD give him as a politician, and his anger at the misinformation about ADHD which still circulates.     This was the first debate about ADHD in the Parliament and is a testament to the campaigning of many organisations, including the Scottish ADHD Coalition, over the past year.

We are looking forward to a roundtable with Health Minister Maureen Watt early in the next session.

MSPs will debate ADHD on 5th June

GOOD NEWS – there will be debate about ADHD in the Scottish parliament on Tuesday 5th June just after 5pm, sponsored by Daniel Johnson MSP.

http://www.parliament.scot/parliamentarybusiness/28877.aspx…

We have sent the attached briefing to all MSPs about ADHD issues in Scotland.

If you have anything you would like your local MSP to raise, you could email them about it and ask them to attend and talk about it. Mark your email urgent as there is not long to go. If you don’t know who your MSP is, consult http://www.parliament.scot/msps.aspx

Coverage of the debate will be on BBC Holyrood live from 5pm – watch it at http://www.bbc.co.uk/news/live/uk-scotland-scotland-politics-44355350

Download the MSPs briefing on ADHD June 2018

Westminster MPs debate ADHD diagnosis and treatment

A video of last week’s half hour Westminster Hall debate on diagnosis and treatment of ADHD is available on our Facebook page. Big thanks to Jo Platt MP for bringing this motion and speaking so powerfully, and good to hear the response from the Health Minister Jackie Doyle Price MP. The huge response from all across the UK to the brief survey carried out by ADHD Action to prepare for the debate adds to the weight of evidence presented in our ‘Attending to Parents’ report. Many of the issues highlighted in England apply here in Scotland too – and we plan to bring these to the attention of the Scottish parliament soon. Watch this space.

Westminster Hall MPs debate on ADHD 15 May 2018

Watch last week's half hour Westminster Hall debate on diagnosis and treatment of ADHD. Big thanks to Jo Platt MP for bringing this motion and speaking so powerfully, and good to hear the response from the Health Minister Jackie Doyle Price MP. The huge response from all across the UK to the brief survey carried out by ADHD Action to prepare for the debate adds to the weight of evidence presented in our 'Attending to Parents' report. Many of the issues highlighted in England apply here in Scotland too – and we plan to bring these to the attention of the Scottish parliament soon. Watch this space.

Posted by Scottish ADHD Coalition on Monday, 21 May 2018

Adult ADHD highlighted on the Victoria Derbyshire show

Adult ADHD was discussed on the BBC2 Victoria Derbyshire show this morning, featuring Michelle Beckett of ADHD Action, Jo Platt MP and Abi Nicol, co-moderator of the ADHD/ASD UK Community Support Facebook group which has over 66,000 members. The feature highlighted the fact that adult ADHD has only been fully recognised in the past 10 years, but that adults with ADHD benefit enormously from diagnosis and treatment. Michelle described how the (unquantified and likely minimal) risks of medication for adult ADHD can be far outweighed by the mental health risks of ADHD remaining untreated. Other participants to the programme talked about the importance of other therapies alongside medication to help adults with ADHD manage their lives, and the patchiness of NHS services for adults.

You can watch the clip on our Facebook page here.

TV coverage of our report Attending to Parents

Here you can see some coverage of our new report, Attending to Parents. Huge thanks to the families who kindly agreed to be filmed.

BBC Scotland Evening News 17.4.18

STV Evening News 17.4.18

 

 

BBC Scotland and Herald coverage of our new report

The BBC has covered the launch of our new report, Attending to Parents.

http://www.bbc.co.uk/news/uk-scotland-43781070

And there was a piece in The Herald

http://www.heraldscotland.com/news/16163247.Children_with_ADHD_being_excluded_up_to_six_times_on_average_amid_learning_support_cuts/

Big thanks to Avril and Rhys Sinclair, and to Joanne and Michael McPeake, for going on record to talk about life with ADHD.

Parent survey about ADHD services in Scotland published

April 17th 2018 saw the publication of the results of our survey of parents about health and education services for children with ADHD across Scotland. The survey was answered by more than 200 parents of children with a confirmed diagnosis of ADHD across Scotland and paints a picture of health and education services which are excellent at best, but not consistent enough. Many health services are overly focused on medication provision as the only treatment on offer for ADHD, and teachers urgently need more training on AD.

The report also highlights the huge value that peer support groups, including Coalition members, bring in supporting parents to feel less alone.

DOWNLOAD THE REPORT HERE

Download our press release about the report here

The report makes a number of recommendations:

For Health Services:

  1. Waiting times for CAMHS teams are unacceptably long in some areas and this is a barrier to timely assessment and review of children with ADHD. They need to be reduced.
  2. Parent training tailored to the needs of parents of children with ADHD should be offered to all families at diagnosis.   Programmes such as NHS Fife’s Pinc© for parents of primary school children and Young People In Control (YPinc)©, which recognises the changing needs of adolescents, should be available for all families.
  3. The availability of written information offered to parents and children about ADHD needs to be improved.   Children need information tailored to their age group.   As children mature and reach adolescence, it is particularly important that they are supported to find out about ADHD for themselves and begin to take responsibility for managing their own condition.
  4. Current treatment for ADHD is very medication-focused. Whilst our survey could not assess unmet need, there is a case for greater multi-disciplinary team support, involving not only ADHD nurses and psychiatrists but also psychologists, occupational therapists, speech and language therapists and dieticians for children with more complex needs. Families who do not at first accept the offer of medication should not be discharged from the service if they still have needs.
  5. ADHD cannot be seen in isolation. There is a need for more joined-up neurodevelopmental care pathways where children can be assessed for related difficulties such as ASD and sensory issues alongside ADHD, and holistic treatment plans can be put in place.
  6. CAMHS teams need to be more proactive in reaching out to education services, and not only as part of the assessment process. After diagnosis, CAMHS should be working with schools to ensure they understand the diagnosis and make and implement appropriate plans, and jointly to monitor the effectiveness of both health and educational interventions.

For Education Services:

  1. Additional support plans for children with ADHD need to be made and, crucially, consistently implemented by schools. This includes clear communication between teaching staff and between schools and parents.
  2. Teachers need more training about ADHD, both in order to recognise signs and symptoms and refer children for assessment and also to manage children with ADHD in the classroom. There should be a systematic programme of continuing professional development about ADHD and related disorders, as well as online resources available as needed to support teachers.
  3. Mainstream education may be an unrealistic goal for some children with ADHD and more complex needs. Where needed and appropriate, specialist provision should be available.