The Coalition recognises that the recent Panorama documentary has caused considerable concerns to many members of our community.

We congratulate the documentary team in bringing to the attention of the wider public the paucity of services within the NHS for the assessment, diagnosis, and treatment of this complex condition, and the fact that many who suffer from its impact are forced to seek private services.

We know also that highly qualified clinicians are as concerned as patients and that efforts are being made to persuade NHS managers that more needs to be done to modernise patient pathways for assessment, treatment, and post-diagnostic support.

We have concerns that the programme may have mis-represented both the motives of patients for seeking support and the quality of assessments offered by the private sector and believe that clinical professionals should be judged not by journalists but by their own regulatory bodies and according to the standards laid out in national practice guidelines.

ADHD in the adult population is vastly under-recognised and under-treated at a huge cost to the individuals concerned, their families, and to society as a whole.

Intelligent, well-informed debate about how to progress intervention and support is to be welcomed, but programme-makers should be aware of the unintentional consequences of making blanket statements about clinical services in either the public or private sectors  and the potential damage that may be caused to innocent and well-motivated professionals who are driven to fill gaps in provision rather than seek to profit from failings elsewhere.

We urge the BBC to consider carefully in future how it chooses to portray the myriad of issues that ADHD raises, and to ensure that an appropriate balance has been struck in raising what may be justifiable concerns with the principles of journalistic integrity and natural justice to those affected.


Latest NHS Scotland ADHD prescribing data published

NHS Scotland has published the latest data on ADHD prescribing in Scotland, for 2017 – 18. The headline figures show a further modest increase in prescribing for kids up to 19 years of age – with the proportion of school age kids on treatment now lying just above 1% (the NICE consensus on the prevalence of severe ADHD is 1.5%). There were 9400 kids on treatment across Scotland at the end of the year.
For adults, the rise is much sharper – an increase of 20% in the number of adults aged 20+ on medication over the past year. However, the total number of adults on treatment remains very low across Scotland, at 3900. The increase is mostly amongst younger adults and reflects the past few year’s increases in recognition of ADHD in children now feeding through. However, we know that many adults with ADHD still remain undiagnosed and many more drop out of services at the point of transition from childhood to adulthood.
Of course medication is only a proxy for the number of people with an ADHD diagnosis – but data from our recent parent survey suggests that 80-90% of children with a diagnosis are medicated.
Medication remains only one part of the set of strategies needed to get the most out of life with ADHD and the Scottish ADHD Coalition continues to campaign for people with ADHD to have access to improved information, psychological support and other therapies – and for those in education, employment and the criminal justice system to have a better understanding of how to support people with ADHD. 
Read the BBC coverage of the increase in prescribing.

Coalition chair moderates Royal College of Psychiatrists CAMHS faculty debate

At last week’s Royal College of Psychiatrists CAMHS Faculty Conference held in Glasgow, Geraldine Mynors, Chair of the Scottish ADHD Coalition, chaired a ‘Harkness table’ debate.  The participants were four young people with experience of Scotland’s mental health services:

  • Charlie MacKenzie-Nash, Volunteer Faculty Service User representative for the Royal College of Psychiatrists.
  • Ross Pollard, a social researcher currently working with Adopt an Intern to help get people with disbilites into work
  • Alex Lightbody, a student nurse
  • Kareen Stewart, a care-experienced Ambassador on the Communities that Care project in Renfrewshire, for Who Cares Scotland.

The debaters chose and took on the challenging question:

‘How can we ensure that CAMHS services are available to those in the greatest need, and not flooded by the tidal wave of mental health difficulties experienced by young people today?’

The wide ranging debate was enthusiastically received by the audience of psychiatrists and other mental health professionals from across the UK.  Some of the points where there was consensus were:


  • The statistics on the increase in young people reporting mental ill-health and referrals to CAMHS speak for themselves – but it is unclear how much this is due to a welcome reduction in stigma about speaking out about it.
  • More work is needed to understand the role that social media and smartphone addiction have in exacerbating mental health problems – and how much these can also help.   Austerity is also likely to be linked to mental distress amongst young people.
  • CAMHS services are under-resourced and clearly need more funding to prevent a much bigger bill in the adult mental health system and society at large.
  • However, besides more resources, CAMHS services need to look at how they organise themselves and target their services. The criteria for accepting or rejecting referrals at the moment often seem arbitrary and need to be more rational – with more information about children referred gathered up front.   Too many children have to repeat their story over and over again, and come up against staff who are ‘patronising’ and – in particular  – seem to find it hard to relate to adolescents.  Separate services for teens and young adults could help – possibly offering more group consultations and other age-appropriate interventions.
  • Diagnoses and ‘labels’ can sometimes be profoundly unhelpful to young people and only add to their stress and anxiety.  Words like ‘borderline personality disorder’ can carry real stigma. On the other hand, the young people with ADHD in the conference felt that a much earlier diagnosis would have helped them avoid other mental health problems down the line.
  • Mental health prevention needs a much greater emphasis – along with first line services which GPs can refer to (like school counsellors) before problems get out of hand.  School is the place where most young people can be reached, but shouldn’t be the only setting for prevention work – youth workers and other youth activities play a huge role too.

The Scottish ADHD Coalition was proud to have been involved in this event, and impressed with the huge insight and courage shown by the young people involved in order to highlight the  ways in which CAMHS services need to rise to today’s challenges.

The debating team worked with Debating Mental Health to prepare for the debate.  The Conference was chaired by Professor Helen Minnis of the University of Glasgow.




ADD Impact adult ADHD course re-launched

The Scottish ADHD Coalition is working with the Central Scotland Adult ADHD Groups to re-run ADD Impact, a six week course for adults with ADHD which was originally developed in Edinburgh by the Addressing the Balance charity.

With a grant from Shire Pharma, the course is being revised and updated and will be delivered over the next year in at least four locations.


The first of these will be Glasgow, and booking is now open at


Any adult with a confirmed diagnosis of ADHD, or who has been referred to a psychiatrist for assessment, is welcome to register to attend.

Watch this space for details of further venues and dates for subsequent courses.

New data highlights increase in children’s antidepressant prescribing in Scotland

New data obtained by the BBC shows a concerning rise in antidepressant prescribing for children in Scotland. In this comment we highlight that undiagnosed ADHD and ASD can be one thing which gives rise to mental health problems in young people.

As well as treatment for anxiety and depression, much could be achieved if young people were able to engage more with the Outdoors, the arts, exercise and purpose – and if parents were better supported.   All things we plan to work on in the future.

BBC Reporting Scotland news 24th July 2017

Adults with ADHD in Scotland denied assessment

Image may contain: textIf you have received a letter anything like this, please get in touch with us. 

ADHD is recognised by NICE, the World Health Organisation, the Scottish Intercollegiate Guidelines Network, the Royal College of Psychiatrists and the Scottish Government, and indeed improving services for ADHD was the subject of three recent parliamentary debates in Westminster and Holyrood.

Although symptoms must have been present before the age of 12 for a diagnosis, there is inevitably a huge number of adults with it who were not diagnosed in childhood when the condition was less well understood than it is now.

It is thought that around 2.5 – 4% of the adult population would benefit from treatment for ADHD(1), but NHS Scotland data shows that less than 1 in 1000 adults (0.1%) in Scotland were taking medication for ADHD in 2017.

There is undoubtedly a shortfall of adult psychiatrists with the time and expertise to manage demand, but turning people away at the door is not the answer.

We are on the case.  Watch this space for updates.


  1. Faraone SV, Biederman J. What is the prevalence of adult ADHD? Results of a population screen of 966 adults. Journal of attention disorders. 2005;9(2):384-91.

Salvesen Mindroom University of Edinburgh study looking at learning in ADHD

The Salvesen Mindroom Centre Research Centre team at the University of Edinburgh would like to say thank you to everyone from the Glasgow ADHD groups that volunteered to help us pilot our new study looking at learning in children with ADHD. Now this pilot study has been completed we are starting the official recruitment stage of the project.

This study is looking at the relationship between how children with ADHD remember things and pay attention and how they do in maths and literacy including reading, spelling and writing. There is a suggestion in research that memory and attention may be linked to how children with ADHD learn these subjects. We are looking to improve our understanding of this and to tackle the difficulties many of these children face in their learning.

In this next phase of the project we are looking to recruit around 120 children aged 6-12 years referred to Child and Adolescent Mental Health Services (CAMHS), focusing on the North CAMHS team in Edinburgh. We also hope to extend this study to other CAMHS teams in the very near future.

Image result for salvesen mindroom research centre


New ADHD Parent Support Group for Dumfries and Galloway

We had an exciting day today at Castle Douglas Town Hall, hosted by the Dumfries and Galloway Parents Inclusion Network, meeting up with parents of children with ADHD and staff from Dumfries and Galloway CAMHS – to talk about creating a new support group for families affected by ADHD in Dumfries and Galloway. A closed Facebook group has been created for parents in the area who would like to get involved in the new group, and you can join it at

The Coalition will continue to support the new group as they get going with workshop resources and other information about ADHD.

For more information you can contact Shirley Duggan at Parents Inclusion Network.